Philanthropy

This Foundation Gives New Hope for People with Lupus

A nonprofit organization aims to spread awareness and fund research on lupus.
IMAGE COURTESY HOPE FOR LUPUS FOUNDATION
Comments

In 2007, Emmeline Aglipay Villar received a devastating diagnosis. After noticing rashes and cystic acne on her face, she went to see her physician, who broke the news—she had lupus, an incurable autoimmune disease.

“I remember seeing my parents tear up as the doctor explained the condition. My mother asked the doctor with a trembling voice, ‘Doc, will Emmeline die?’ I laughed out loud then and said, ‘Of course not!’ even though I was unsure of the answer myself. Many Filipinos do not know anything about lupus. Most think that having lupus is a death sentence. It is not. Though at present there is no cure, people with lupus can overcome their disease and control it, like I did. But there are some instances when one is diagnosed too late and not much can be done to save the person’s life. This makes early diagnosis of the disease important.”

ADVERTISEMENT - CONTINUE READING BELOW


Villar, a three-term congresswoman and lawyer by profession, together with Melanie Cuevas and Lila Shahani, rheumatologists Dr. Paulo Lorenzo and Dr. Ging Racaza, and lupus awareness advocates Sidney Salazar and Nadine Bernardino co-founded the Hope for Lupus Foundation in 2016. The foundation is a non-profit organization that fights lupus through increasing awareness about the disease for early diagnosis and proper treatment, and by providing support to people with lupus and their families. The group also provides financial as well as emotional support to afflicted patients.

ADVERTISEMENT - CONTINUE READING BELOW


Villar hopes that timely information on the disease may allow others to recognize the symptoms and be proactive about seeking treatment. The group also hopes to go further by coordinating with other initiatives so that they can fund lupus research, improve lupus treatments for lupus, and possibly even find a cure for lupus in the future.

ADVERTISEMENT - CONTINUE READING BELOW


With the campaign, Villar hopes to reach people from all walks of life. “It’s important to make this information available not just to people who have access to the internet or television, but also to those living in the rural barangays. Our foundation seeks to educate barangay health workers, doctors in the barrios, and primary care providers about lupus and its symptoms,” she says. “We want to be able to facilitate their coordination with rheumatologists nearest to them. We believe this can significantly reduce deaths due to lupus.”

ADVERTISEMENT - CONTINUE READING BELOW

For more information on how you can help, log on to hopeforlupus.org.ph, or e-mail [email protected]

This story was originally published in the July 2017 issue of Town&Country.

Comments
View More Articles About:
About The Author
Maria Milagros G. Augustines
View Other Articles From Maria Milagros G. Augustines
Comments
Latest Stories
 
Share
Sotheby's takes T&C inside the mind of groundbreaking designer Suzanne Belperron with an exclusive video.
 
Share
From Arinnera to Zenvo, these are the best supercar brands in the world.
 
Share
Because sometimes "Happy Father's Day" just isn't enough.
 
Share
Ahead of Christie's upcoming "sale of the century," photographer Claiborne Swanson Frank captures fashion's most powerful wearing important jewels from Maharajas & Mughal Magnificence.
 
Share
Imagine: The museum is a charming little shop filled with fragile plates. The plates are dangerously thin and also cost more than your life.
 
Share
The monarch's birthday happened to fall on Easter this year-prompting double the celebration from royal watchers.
 
Share
Outsmart nature’s mood swings with these tricks to transitional dressing.
 
Share
After a day of engagements in Cumbria, the royal couple enjoyed each other's company at a local inn.
 
Share
The families who have been influencing the past and present of the Philippines for generations.
 
Share
Load More Articles
CONNECT WITH US